About the Film 

Forgetful Not Forgotten is an intimate portrait of a family coming to grips with the realities of early-onset Alzheimer’s disease. When John Wynn is diagnosed with the disease at the relatively young age of 57, his son, Chris, decides to chronicle his family’s journey to John’s final days. An honest, moving, and at times heartbreaking film, Forgetful Not Forgotten weaves past and present to both celebrate the man who was and mourn his painfully slow and steady disappearance.

As much as this is a film about the changes Alzheimer’s brings to a patient’s life, it is even more about how this impacts on family and friends. Forgetful Not Forgotten walks us through Chris and his family’s experiences as they are forced to recreate themselves over the course of John’s disease – changing from a wife and children to increasingly challenged caregivers. Chris also takes us inside the medical world of Alzheimer’s diagnostics and prevention as he tends to his own concerns about this potentially hereditary disease, and the ramifications for his own future.

As a tribute, a personal journey, and a documentary on the broad-reaching effects of an increasingly common disease, Forgetful Not Forgotten succeeds on all levels, delivering an empathetic message of hope and encouragement to anyone touched by Alzheimer’s. If nothing else, Forgetful Not Forgotten teaches us an extremely important lesson as we watch a family give so much of themselves to a loved one losing a little more of himself every day: we learn that life is not only about holding on to what we love, but knowing when, and of what, to let go.

Watch the trailer

 

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Barbara Caudle
22-Apr-2011
Votes: +0

Regional Director/Colorado Springs

Hi, Chris,
Congratulations on your award! Your documentary tribute to your Father and Mother allows viewers to get to know and love them both. I loved how quickly your father laughed at things, and his zest for life! I shed tears at several places in the film, but the last time they were happy tears at your wedding. What a loving legacy for your family!

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Cathy
12-Jul-2010
Votes: +0

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Dear Chris:
I work for the Alzheimer Society in my area and was given this DVD to watch a couple of weeks ago. Finally this evening I cracked open the seal and watched intently on your personal documentary of how your family dealt with dad's early onset of Alzheimers. Hats off to your whole family for being so close and loving and dealing the best you possibly could. Your mom will have her own gold star in heaven. It could not have been easy for you to work on this project but you did an amazing job and gave an excellent first hand look at how the disease progresses so quickly. Here is hoping you and your family a long and healthy life as I believe going through the disease with your father will have made you more compassionate.
Cathy

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Patricia
08-Jan-2010
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Chris, this was such a beautiful film, thank you for making it. Unlike most here, I have not had to deal with this illness, but nonetheless was deeply touched by your journey. We are richer for having your gift. I wish you and your family all the best as you continue on..
Thank you, Patricia..

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Chris Wynn
07-Jan-2010
Votes: +0

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Thank you Shona!

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Shona Silzer
05-Jan-2010
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Dear Chris,

I was channel surfing this evening, and came across your film on the Knowledge network. WOw - Not only was I choking back tears, but I was left feeling hope and love rather than ressentments or dispair. I was so inspired by your steadfast love for your father, and the closeness of your whole family. And your father John, what a man! It was so wonderful to watch his delight in almost everything.
My grandmother has alzheimers. Last year, my grandfather reluctantly decided it was time for her to live in a care facility that could better meet her needs. It was the hardest thing I think he's ever had to do in his life. I know this, because I was there for him every step of the way. I felt his pain and anguish.
Its easy to bear resentment towards the disease, afterall it has robbed my grandfather of his wife. For him, its like a slow and painful death. He can't even mourn her, because she is still here. He has a very hard time dealing, but somehow he remains optimistic.

Thank you for making the film Chris.

Regards,
Shona Silzer

94
Chris Wynn
14-Apr-2009
Votes: +0

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The DVD is now available!


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Chris Wynn
27-Mar-2009
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The DVD will be available starting Friday April 3rd on this site! Please check back.

Chris

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Nadine
27-Mar-2009
Votes: +1

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Hello, when will this be available for purchase online or elsewhere?
Thank you!

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Steve Brewer
13-Mar-2009
Votes: +0

President

John, Marilyn and their family are old friends whom I have know from the Dunany community in the Laurentians for a life time.
Son Chris has created a wonderful tribute to his Dad and is helping others like me to better understand the tribulations that those aflicted with the desease and those who are passionately involved with their care, experience throughout their illness.
John would be very proud of Chris for what he has and continues to do in this regard.
John is an alumni of Westmount High School and continues to be warmly remembered by many of his classmates.

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Laure
22-Feb-2009
Votes: +0

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My mom is dealing with the same things your mother has gone through as the main care provider. She encourage all of us (six children) to watch your show, as my dad has some dementia. I watched the show with both my mother and father (a few tears fell). My dad commented on some of the tests you went thru and it opened up some discussion. We all want to extremely want to thank you Chris for allowing us in your families lives during this time.

We are interested in obtaining a copy when it becomes available as not all my siblings were able to watch it and some are still in denial.

Thank you and God bless.
Laure

102
The FNF Team
28-Jan-2009
Votes: +0

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We\'ve noticed that many who have posted here have shared personal experiences about caring for a loved one with Alzheimer\'s Disease and related dementia.

Just a reminder that by going to the Sharing Section and becoming a member you can share your story with the entire FNF community, you can create your own blog and post in the discussion groups. As a member you\'ll also be able to use the new \"private message \" feature coming later this week to communicate directly with Chris Wynn and other community members.

Thanks for your comments from the FNF team!

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linda leitch-jeffery
26-Jan-2009
Votes: +0

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Hi Chris, A friend told me about the video but I am unable to bring it up, except for a few clips, on the TVO site. I would definitely purchase a dvd when it becomes available. How will I know?

My husband does not have early onset but he was diagnosed with AD 9 years ago. At first we . tried to go on living as normal as possible, mindful of the disease but not controlled by it. However for seven years now it has been full time hands on care from me. My love for my husband has grown in spite of the ravages of the disease and I have experienced personal growth that truly amazes me. I have no immediate family in the area but we have some very good friends who try their best to find ways to support me in the challenge. I hope to keep my husband home until the end or very close to it .Thank you for your story. I hope to see it all soon.

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Jacki
25-Jan-2009
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Hi Chris,
unfortunately I only caught the end of the documentary. I really would like to see it from the beginning and hope to catch it again. My mom was just forced on sick leave from work about 2 weeks ago due to her memory, etc. She is in the process of undergoing tests to find out what is causing this (blood tests, CAT scan). She is 58. This is a very scary time for all of us. I hope we get some answers and I hope we can slow down this "cognitive decline" we're watching happen.
Thanks for sharing your family's story.

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Bonnie
23-Jan-2009
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What a great documentary, I like you have had a parent diagnosed with EOAD. My father was a very smart man, Vice principle at a elementary scool for years. Was diagnosed at 48, I myself was 16.My father and I were never really close but one thing about this disease, It brought us closer toghther. My dads 60th birthday, we moved him into the auxillary, and he passed away at 63, one month later, I had a baby. I know my dad would have loved my kids more than anything, and we talk all the time about him up in heaven. I am having a very hard time wondering what my future holds for me, and I have 2 little kids, and in less that 13 years I will be the same age as my dad when he was diagnosed.Sometmes I think I am going to drive myself crazy with worry, but worrying doesnt solve anything. Has anyone decided to do genetic testing??
Marry Emma, if you would like to talk, Im here.

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Mary Emma
22-Jan-2009
Votes: +0

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Hi Chris,

I write this as tears are streaming down my face. I thank you from the bottom of my heart for doing this video. My Beautiful Mother, Patricia, lost her battle to EOAD in May 2005, 2 days before her 63rd birthday. I honestly felt as though you were telling our story. My mom started with the disease when she was 50, I was 17, and it was a LONG battle. I really could just pour my soul out here, but I won't. I just wanted to thank you so much and your mom. My dad, thank God, is still with us, but has suffered from a stroke last year and now has minor memory issues. Nothing like what we went through with mom. I would love to be in contact with you and others would have been, or are in the same situation. This was great for me to see that someone else actually did go through this.
I would also like to purchase a copy of your story when it's available.

Big Kudos to you! I know it wasn't easy.
Mary Emma
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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Jocelyn
22-Jan-2009
Votes: +0

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Hi Chris,
I had the opportunity to watch your film last night. I just lost my father to alzheimers last week (Jan12/09) and for me your film hits home. We as a family tried everything in our power to keep dad at home for as long as possible, dad entered into the care home last Feb/08. Perfessionally, I work within the home care system and part of my job is to determine when a care home is needed, so for me I certainly have experienced exactly what you and your family went through. I wanted to thank you for sharing your experience and I am very interested in recieving a copy of your film to share with my family as we try to put closure and accept what has happened since the recent passing of our father. Wonderful job! Sincerely, Jocelyn

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Becky
22-Jan-2009
Votes: +0

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Hello Chris:

My husband and I watched your film last evening. As many before me have written, I too felt your family's journey was our own.
I lost my father at the age of 62 in 1999. He was a former NHL goaltender that suffered a head injury in the early 1970's. His dementia began in the early 1990's.
The road a family travels with a loved one with Alzheimers/Dementia is such a difficult painful path. The loss, profound.
It is true that only those who have experienced this devestating disease can understand. In your voice I heard my own. In your pain and in your fears and the love you have for your father.
I commend you for your courage and thank you for making this film.
I am sure your father is very proud.

Warmest Regards

Becky Halden


I commend you for your courage.

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Ian Denchasy
22-Jan-2009
Votes: +0

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Hi Chris,

I must admit I'm NOT looking forward to watching your film, but feel I must do so nevertheless as a learning exercise to apply toward my current family situation. My wife's 78 year old mother has been diagnosed with and is now suffering from, severe dementia (coupled with advanced Parkinson's disease). It is evolving into Alzheimer's like behavior, with the added bonus of extreme mood swings, paranoia, violent outbursts, and constant need for care taking every minute of my wife's time while I struggle to keep our business afloat.

I hope you can get your film out to a wider audience as this problem, along with myriad others that creep in to a population living longer (thereby seeing more of these diseases) must be dealt with by societies at large. So many questions arise that walk fine lines of morality.

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Bram Caron
22-Jan-2009
Votes: +0

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I fell upon your documentary last night on PBS and within second had called ten friends and colleagues to watch. You have done a fantastic job in recording your fathers voyage and sharing the truths of Alzheimer's with the world.

My tears started with the scene where John was trying to find Hadley and the your patience and direction, he found his friend...I'm tearing up again...flashback to experiences.

Thank you again for inviting all us into your family.

Bram

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Eleanor Payment
21-Jan-2009
Votes: +0

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I just watched your documentary on TVO although I am in B.C...I went to school with your Mom & also knew your Dad having spent summers at Clear Lake . The film was excellent and I felt very sad for both Marilyn & John and I know how dedicated she was throughout those years. I would like to get one of the DVD's when it is available.
Eleanor Payment

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Vanessa
21-Jan-2009
Votes: +0

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Hi Chris,
My Mother and I just finished watching your film. My father had early onset Alzheimers, not quite as young as your dad but his started around the age of 65 and he passed away at 74 a year and a few days before your dad did. From the beginning to the end of your film, it was like watching a movie about our life with Dad after he got the disease. It was so close to home. The stages that your dad went through mirrored my dads. Dad got diagnosed after I gave birth to my Son, my parents first grandchild and I was now a single mom, living back home with her parents and found myself with a newborn baby and being a caregiver to my dad, as mom still had to work. I believe things happen for a reason and I was meant to have that role. As hard as it was for 4 yrs doing this double role...I would not take it back for a moment. I cherish those 4 yrs as dad and I grew very close and I was someone he felt he could trust as he got sicker. Like your family we too had to eventually place Dad in LTC, but thankfully being a Korean Veteran he was able to go to Sunnybrook, where they took care of him very well and we were able to visit everyday. Your movie certainly painted a very real understanding of what families and cargivers face and that, I thankyou for. In the work I do, I have alot of contact with seniors with the same obstacles and going through what we did enables me to understand and assist my clients in the road ahead. Mom still grieves my Dads loss daily, even though it has been over 3 yrs now. Your Mother and mine both are remarkable women, who truly took their vows very seriously and were truly wonderful wives and role models. I, like you had my own fears after my Son was born and dads diagnosis, I thought to myself what if I get Alzheimers or my Son, but you realize that you cannot dwell on what might happen and just live life to the fullest. Congratulations on your marriage and I hope that you have as wonderrful of a marriage as your parents did. Bless you and your family for such a touching film.

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Laura
21-Jan-2009
Votes: +0

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Hello Chris

I just watched your Film on TVO
After having a good cry came over to this website for more info.
Your movie was wonderful and very touching
Thank you for sharing your Fathers life and your experiences with us all.

I was curious if you possibly had any photos of Hadley and your Dad you could share?
I would really like to put them in my photo album along with all the other Dogs and animals that touched me or my life in some way. Something about Hadley dying just after your father left just got to me and I would like a nice image of the two of them together.
You can e mail me directly if you like

Thanks again for sharing John's story with us....
Laura

94
Chris Wynn
21-Jan-2009
Votes: +0

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Hi Kathryn & Lucy

Thank you both for your kind words, I'm glad you had a chance to view the film, it's been a long road but I'm glad I could share this experience with everyone and I hope it can even help some people who might be going thru the same thing.

Thanks again

Chris

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Lucy D
21-Jan-2009
Votes: +0

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Hey Chris -
I just watched your film on TVO and I would like to thank you and your family for such an intimate portrayal of what it's like to cope with such grace in the face of such an awful disease. Your father was a wonderful man and your mother is a real inspiration.

My family had to go through the same situation recently and because they all live in England, and I live here, I really missed out on the last few years of my grandfathers life and the emotions that my family went through. Your film made me feel those things finally and I want to thank you for that.

Lucy D

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Kathryn Maroun
21-Jan-2009
Votes: +2

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Chris
Thank you, to you and yours for telling your story.
Powerful as a film. Powerful in love.
Warm regards
Kathryn

142
Tara A
21-Jan-2009
Votes: +0

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I would love to buy a copy when it is available Thanks Chris

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Chris Wynn
21-Jan-2009
Votes: +0

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Hi Tara

I believe it will be on Knowledge again tonight, but very late, but starting in February we will be selling a DVD on this website, As of now the film has only been shown in Ontario, and B.C. We are still trying to sell it all over Canada and then to the states, again i thank you for your interest and I hope you get to see it all. The website has really just begun, and we're hoping to get more people on and create a whole community of people who have been affected by the disease.
So they can share their own stories.
talk to you soon

Chris

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Tara A
21-Jan-2009
Votes: +0

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Thanks you Chris , your film is something I cant stop thinking about it really moved me , I cant imagine what is was like for you guys , I havent cryed like I did while watching in a long time, your mom is an amazing woman, all of you are amazing people!
Thank you for making this film it opened my eyes to this disease and I know have a better idea of what my dad went through the last few months of my grandmas life, and i pray I wont have to go through this with him later in life.
i live in BC Langley area do you know when it may re-play I would love to see the whole film , I only saw the last half , again thank you for sharing your story !
Tara

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Chris Wynn
21-Jan-2009
Votes: +0

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Thanks Tara! I'm glad you had a chance to see the film, I would love to hear more about your own story, I believe sharing personal stories is the one thing that helps us through this and other hard times!

Chris

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Tara A
21-Jan-2009
Votes: +0

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Hi there I watched your movie last night , and I have to say that I was overwhelmed with emotion watching what you and your family went through. You are an amazing family and I thank you for sharing your story. My family has a history of Alzheimers on my dads side and I hope that if I am faced with this in the future with my dad that I can be as strong as your family !!
Thank you ,
Tara

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Chris Wynn
21-Jan-2009
Votes: +0

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Hi Diana & Ian

Thank you both for your kind words and for telling me your stories, I'm glad you could see the film and relate it to your own experiences. Thanks again!

Chris

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Ian Pedersen
21-Jan-2009
Votes: +0

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hi chris and family,

wanted to let you know i appreciated your film last night...it was quite emotional for me as it helped me remember my fathers fight with brain cancer two years ago. although a different disease, our family could relate directly to the struggles of seeing a loved one slowly become debilitated from the disease. i respect your courage to share your family's experience...your dad would be expremely proud.

ian.

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diana andersen
21-Jan-2009
Votes: +0

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to chris and family,it hurts when u watch other families go through what you go through yourself. my father had huntingtons disease(brain disease¨¨,my mom was his caretaker and it was hard to put him in homehe was only 51 while we were dealing with him as a family close like yours, my mom died at 51aneurysm, so it was very hard all support was up to me and my sister.he died 6 years later.younever get over the pain.it hurts forever.when u have no parents it gets hard to be happy.and i am only 39 and found out that i have HD too.when illness enters a family it makes us happy with the little things. my heart goes out to you and all that u are doing for other people.Awareness is the best edication.

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Chris Wynn
16-Jan-2009
Votes: +1

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Hi Everyone

I am Chris the director of the film "forgetful Not Forgotten" I'd like to thank you all for watching the film and for all your kind words.

Lisa & Maria because you both work in with people who have Alz I encourage you to share your knowledge with others on this site, and again thanks for your kind words.

Karen
My mother did play Basketball around that time so I'm sure that's how you know her I will pass along your message and try and get her to reply to you.

Tom
Thanks, and I will also ask my mother about the meds that he was on, I know he was on many different drugs over the years.

Chris

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Tom
16-Jan-2009
Votes: +1

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Chris,

Thank You for sharing this documentary! I was diagnosed with EOAD at 58 years old and immediately put on medications to slow the progress. I'll be 60 in 6 months and feel confident that a cure will become available soon! The disease has not effected my life too severely yet, only lost 3 jobs. Working and providing for my family are important issues for me. Your dad had music and that was a good thing.
I would appreciate it if you would tell me if your dad was put on any meds to slow the disease.

Tom

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Karen
15-Jan-2009
Votes: +0

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Hello Chris,
I watched your film and it was very good. As soon as it started I realized both your Mom & Dad are familiar faces to me but can't place them exactly. I lived in Montreal, attended Sir George Williams University(BSc) and played on the womens intercollegiate basketball team while in university from 1969- 1972.
My guess is that perhaps your Mom was also on the team, hence her familiar face. Can you let me know if she played ball? My maiden name was Wilkinson. Hopefully you can let me know so I can stop wracking my brain to place your parents from my imperfect memory. Best wishes to you & your family. Regards Karen

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Maria
13-Jan-2009
Votes: +1

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I watched the documentary on TVO, and it really is a touching and very real flim. I work with those who suffer with Alzheimer's, and I see families deal with the stresses of admitting their loved one into a home, and dealing with the rapid changes for many individuals.
I couldnt help but cry during this film, and thinking what a young age your father had to go through this.
You are a great son, and your father must have been very proud of you!

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Lisa
12-Jan-2009
Votes: +0

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Hi, watched your film last night on TVO, excellent job. I work in the field and felt that you did a great job in capturing the impact of the disease on both your father and your entire family.
You should be very proud.

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Interview with Chris Wynn

What is the goal of your film Forgetful Not Forgotten?