Wish I could say things are the same...

Posted by: Judy DAngelo Tagged in: Untagged 

Judy DAngelo

I am hating this disease lately (more than usual).  Long story short, in January mom became even more unsteady on her feet, was having trouble getting "started" with walking, and fell a few times.  Two weeks ago she began to use a wheelchair and was receiving physical therapy to see if we could regain some stability with walking or whether this was neurological.  They also made sure she wasn't ill or having a UTI and was clear in that respect.

After a week of PT, it became clear this is not a blip on the radar and we believe this is a progression of the disease.  The nursing supervisor asked me if we would be interested in a hospice consult and I did agree to that, since it will be more support for her and I do like the hospice staff that comes to the nursing home, very caring people.

Mom was accepted into hospice - nothing really will change with her care (she won't have to change rooms or anything), she will have an additional aide looking in on her and she is followed closely by the hospice nurse for anything she might need.  The hospice social worker and chaplain visit with her (she doesn't care too much for the chaplain but maybe she will warm up to him) and the social worker will take her outside when the weather gets better on days I'm not there.

She doesn't seem to be aware that there's been a change in the people looking in on her.  I have noticed over the past couple of months she is more tired and although she used to be one of the "late-night" ladies as far as bedtime goes, when I got there tonight a little after 7 p.m. she was already in bed for the night.  We had a nice visit anyway, I asked her if she wanted me to sit next to the bed or cuddle with her and she patted the bed next to her.  I sang some songs to her, she held my hand and she fell asleep.  She doesn't talk much, just yes or no, and generally only if she wants something. 
Tomorrow I'm taking the dog with me to see her, which she will enjoy.  I'm still working on myself, I just feel like I exude sadness lately. 

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419
Cindy ODonnell
22-Apr-2011
Votes: +0

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Hi Judy,

This disease is horrible and watching our loved ones go through it is difficult. At least we are there for them. So many others are ignored which saddens my heart. Hang in there and make time for yourself.

Cindy

409
Julie Hunter
18-Apr-2011
Votes: +0

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Hello Judy,
I try to keep up with your stories and been working alot.. I am so sorry to see progressing so sudden.Like you have been cherish every moment you get with her I see your love for her and I want you to know u are an inspiration to me. Write her a poem make it big put beside her bed with a picture of you too that will bring a smile to her face :) Make time for yourself and will log in more...

Hugs and strength to you...

0
Barbara
11-Apr-2011
Votes: +0

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Hi Judy,

I'm with you on hating AD! There are stages that I find are a bit easier to cope with and others that are sad, depressing, and just plain difficult. I do think it's harder for us to witness than for the AD person to realize what is happening to him/her.

I believe you're on the right track with doing things that your mum still enjoys... and being present.

Wishing you strength and courage,
Barbara

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