Is this the next stage?

Posted by: Cindy ODonnell Tagged in: Untagged 

Cindy ODonnell

Recently we were called in for a conference visit with the staff who care for Dad to discuss changes in his behaviour and eating.  Since March Dad has lost 12 pounds, mostly due to lack of desire to eat and he has been ill.  The reason for him being ill has not been determined and they are now going to send him for a CAT scan.  He has become a bit of a fussy eater and the staff has tried various techniques to try to get him to eat.  Since they are regulated to make sure he eats according to the Canada food guide they were concerned when he was refusing food.  At this stage of the game we are happy if he just eats, so we told them to just keep feeding him what he will eat and not to worry about the food guide.  
Bathing is becoming an issue as well, he is scared of the shower so they are going to try a different time of the day and using the tub instead to see if that makes a difference.  My husband offered to help in this process as well if it doesn't work.  He seems fine with sponge baths but we would prefer he was bathed in the tub if possible.  Dad's speech is very mumbled but there is the odd time when it is coherent.  His demeanor seems good, so that is positive.  He sleeps more now and doesn't wish to participate in the outings like he did in the past.  I guess this is just another stage of the disease.  It saddens me to see him failing in this way.  But I have to keep my chin up and be there to support my husband and family.  Thanks again Chris for this site, it has helped me through on days like today.  I mention this site to all my clients especially those who have a member of their family diagnosed with this disease.  Even though I know the numbers are growing, lately I would have to say out of every two clients I visit one has a family member living with the disease.  This reality is frightening and the more we can educate others on the disease maybe just maybe more research will be done to help end this disease.

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Cindy ODonnell
24-Aug-2011
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Yes, the CAT scan was finally done. They found something and the doctor said they could look into it further but to what end. The vomitting has stopped and Dad doeesnt seem to have any pain. the doctor was not overly concerned with the results of the scan and said that it would probably be more of a discomfort to but him through more testing. My hubby concurred with the doctor saying to what end do you keep testing someone at his age and who has been through polo, cancer and now suffering from Alzheimer's. If it was medically necessary to probe further they would. So we continue on with life as we know and make Dad as comfortable and happy as he can possibly be.

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Cindy
13-Jul-2011
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Hi Judy,

We are still waiting for the CAT scan, I will update as soon as we get the results. Thanks for asking.

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Judy DAngelo
05-Jun-2011
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Cindy, did they ever do the CAT scan and what did it reveal? It does sound from the description that your dad might be entering another phase.

For bathing, hopefully doing it in the tub will do the trick. My mother also began to cry when given a shower, so they moved to the tub and she's been fine ever since.

My mom's still eating 100% of her meals and still enjoying food, but I agree with you - feeding according to the food guide is less important than making sure he's eating something, even if it's less "nutritious". I will also be taking that approach when mom inevitably begins to refuse food.

I hope things are going smoothly for your dad and your family!

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