I do not know where to begin. It has been a few years and I still can not describe who I am to this "disease" or where my family has gone because of it. My loving Mother is the reason I am here and fear for my own future and that of my siblings is always at the back of my mind. The effect of this on my mother is evident but how many people know how deep and far the hurt goes?
I hear such things as, "she happy", "the family hurts more" and the list goes on. But until you are personally touched with Alzheimer's you can not begin to understand. I have learned to disregard those who have been fortunate enough to not have my experiences, but I will never understand the reaction of family.
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Thanks. I too have decided that when the times comes I will have no regrets and the others will have to live with their own regrets. I do what I can for my Mother but do feel very alone at times. I also have to deal with my Father who does not understand. It is nice to know that other people are out there with the same worries and heartache.
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Hi Donna.... A family member of mine says the reason they no longer visit our mother is because she no longer knows them. I was angry for a long time over this response from them but I've come to see that "they do what they do" and "I do what I do." I'll never understand how they can just walk away and they'll never understand why I just can't walk away. As for fearing for your own future...I too wonder at times if I'll fall prey to this devestating disease. But, it occurred to me a few years ago that this worry was sucking the life out of me and this time of worrying would be better spent enjoying my family. To be honest this refocusing is at times a struggle but I choose this view. My thoughts and prayers are with you as you travel this difficult road. If it helps, you are here in a community that does understand how deep and far the hurt goes.
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