Barbara Dylla
Montreal
QC
Barbara Dylla
13/03/2012 12:52:50
Offline
About Me
Caregiver to parent / family member
2006
Freelance translator
Eldercare, cycling, the environment, movies, reading, gardening
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My Story

My story and my new life started very innocently over the Easter weekend in 2005. I remember like it was yesterday, sitting at the kitchen table with my parents. My mother was 78, my father 79 years old. I thought I would finally take the bull by the horns and ask them if they knew what they would do when they got too old or ill to live in the house. My father answered right away: "We stay here till we die." Easy to say when you're alone, but when you have a spouse, how can you know both of you will be able to do that?

My mother had been diagnosed with Parkinson's in about 1995. Huge shock to a family that had always been in good health. The tremor in her left hand remained stable, however, and we soon saw she wasn't getting worse (we thought of it as a physical illness then).

July 1, 2005: my mother started hallucinating. Scary! She kept brushing cobwebs away, set the table for six (this really freaked my dad out), saw people in trees, in our neighbour's pool... I called her neurologist to make an appointment. I won't go into details, but this man should not have been practicing neurology. But what did I know then?

July 17, 2005: My mother had lost weight and was still hallucinating, though not as intensely. I had my parents over for lunch that day, before heading out to the airport to fly to Switzerland to visit my younger sister, who lives there.

July 20, 2005: My brother phoned us to say my mother was in hospital, dehydrated, unconscious most of the time. Our father had found her on the living room floor early in the morning the day before. Distraught, he'd called my brother in Ottawa, who drove up to take charge of the situation. She would stay for six weeks, undergoing a battery of tests to help the doctors figure out what was wrong with her.

(Fast forward to 2009: The doctor who treated my mother had already detected signs of Alzheimer's in my father in 2005. He was officially diagnosed in 2006.)

That was the beginning of the end of my life as I knew it. Little did I know that my journey into Parkinson's and Alzheimer's would teach me so much and be so rewarding.

 

Saturday, January 14 2012
in BLOG UNTAGGED 

I feel really bad for not keeping up "My story" and not being more pro-active on this site.  I sometimes feel terribly disorganized and unable to keep up with things. Tonight I'm working on my parents' expenses from October... Bookkeeping is rarely anyone's favourite task, but it must be done. Especially as money is owed to me, and my December credit card statements are pretty hefty.

Having said that, my father is doing really well. He's at a good weight, his team of caregivers is stable, we've established a more comprehensive routine for him. One of my brothers was in town in October and took a few video clips, something he does whenever he comes (usually once a year). I would like to post a "compilation" here. No promises as to when I'll get that done, but it's something I want to do if only to be able to send the video to his caregivers who have moved away. While we find it hard to accept my father as he is today, the video clips help us see how he was and how he has changed over the years. In other words, today is the best he'll be ... so we have to cherish that.

Be strong, be patient, and know that whatever you do is better than doing nothing at all.

:-)

 

2 Comments   |  492 Views
Friday, August 12 2011
in BLOG UNTAGGED 

I'm again relying on the printed word for this entry, but I feel it's a crucial subject that many don't know how to approach.

See the link:<...

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0 Comments   |  265 Views
Monday, August 01 2011
in BLOG UNTAGGED 

I will write a separate update soon, but in the meantime, I'm putting a link to a newspaper article that writes about a case of elder abuse that wa...

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0 Comments   |  237 Views
Monday, April 11 2011
in BLOG UNTAGGED 

Much and not much has happened in the last two months. 

On the much side, my father was moved out of the locked unit on February 14 to ...

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0 Comments   |  347 Views
Thursday, January 06 2011
in BLOG UNTAGGED 

Hi all,

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2 Comments   |  556 Views
Sunday, November 21 2010
in BLOG UNTAGGED 

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1 Comment   |  400 Views
Tuesday, October 05 2010
in BLOG UNTAGGED 

... to continue my story. I'm just swamped with work and working six days a week until late evening. I will write again soon.

2 Comments   |  440 Views
Sunday, September 12 2010
in BLOG UNTAGGED 
1 Comment   |  483 Views
Sunday, August 22 2010
in BLOG UNTAGGED 

[OK, so that's a bit of a dra...

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0 Comments   |  422 Views
Wednesday, August 18 2010
in BLOG UNTAGGED 

OK, so that's a bit of a dramatic title. Still, when I think about it, almost everything about my life has changed in the last five years.

1...

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0 Comments   |  445 Views