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We’ve interviewed doctors, researchers, social workers and other experts on care for people with Alzheimer’s and related dementia in order to get answers to some of the most important questions members have about Alzheimer’s disease and caregiving. We update the Ask an Expert section several times a year; if you’d like to submit a question click here.
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 CEOI am the innovator of four non-medical assistive devices that would assist those with mild to moderate demenia (Alzheimer's), our aging population, those who are hearing impaired and those who are medically ill needing vital statistics while at home. ...Susan You should write a book. I have heard this story too many times from too many wronged caregivers.You should make an educational movie.Expose the out of touch family that talks to moma on the phone and decides that she is fine and you are the bad guy. The hell that it causes you on top of dealing with everything else.Hang in there kid. I know how you feel. ...My husband Chet was diagnosed with Alzheimer's at age 62 now 64. He is in the early stages 4. I feel he is doing OK. stutters and sometime can't get the words out. He takes the following: Alzheimer'sHi my name is christine mackie and i am 62 years old and married.I was diagnosed with early alzhimer's march of 2009 and also white matter disease.I am on 10 mg. of aricept once a day and 5 mg. of ebixa once a day.When I had the spect test done they found alzheimers was only affecting my left side of the brain.why would this be?It usually affects both sides.They are going to try and find out why but boy it is taking awhile. sibling fightinghow do u get siblings to understand that dad has alzheimers,and to accept the desease and everything that comes with it, my dad was diagnosed over 2 years ago,after leaving one sister's house to go to the other sisters house for supper which is only a 10 minit ride, he ended being lost for over 17 hours. we had police over i dont know how many city's looking for him, after countless falls in his own home,it was best to have him panneled for a care facility,while we were waiting for placement he moved in with me and my family ,who happen to live in the same small town as my dad,he stayed here for 2 months with frequent trips to hospital, after one nite tryed to go out his bedroom window .when asked where he was going ,he said to the resteraunt, keep in mind it was 4.30 a.m. i worked full time and attended school,1 nite a week still have one child at home and my husband does not live with us mon. to friday as he works in the city,all week we were here by ourselves ,one nite dad even thru a knife at my sons hand, thankfully it didnt cut him,and also threw a ceramic cup at my son,again he wasnt hurt.it was not safe for my dad in a family home no more, he was getting up all thru the nite ,erregular sleeping patterns,anyways there r 11 siblings,and not one other than me can axccept the fact dad is sick. i have been accused of so many things , there is not enough paper to write them all down on. i was the primary caregiver{my mom passed away 3 years ago} and because i was living here everything got pushed on me,there is a power of attorney assigned to myself and two younger siblings,but i was appointed primary caregiver, again because i live here,my dad is living in the facility but when one of the siblings come to visit dad starts to cry and says he wants to go home,and then the phone deesnt stop ringing, how come i am leaving him locked up in there, i dont know how to deal with this anymore, some of them have even tryed to get a lawyer,to remove him from the facility, {keep in mind out of 11 siblings there is only 4 that even come to see my dad, the rest just aurgue amongst themselves making there own decitions,one is the trouble maker ,who lives 1 hour away, and only comes ,maybe 2 fridays out of each month and makes the visit so bad for my dad he crys, the facility even had to call police because she was trying to take him out,that is nice visit 2 hours of nothing except seeing him cry, and telling him it was me who wont let he leave.he is very angry with me right now,but i still go everyday to visit and make the most out of it, i know it is the desease. but it still makes it hard,i dont know how to force these kids to come to terms with this,,,any ideas,please. |
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